Tuesday, October 27, 2015

Late Night

Another night of early rising - three something in the morning. Should have never picked up my phone. It surely doesn't help me want to go back to sleep. Instead I find myself pinning dozens of quilt patterns and playing Words With Friends.

As I was surfing the web instead on sleeping tonight, I found this post on Instagram. She left this on someone else's page-I don't know either of them but I liked it: 

Another family member is back in the hospital. Been there since Wednesday night. We are pretty worn out and we are all lacking sleep. We are tired of being tired and tired of being so worried. Our preacher came by the hospital and read Psalm 42 & 43 to us and it just seemed to fit us. The writer is suffering deeply from something and cries out to God. As my preacher said - it reminds me of y'all with the years of suffering you have had. He said while we may not understand it today - or ever - God is with us. 

Here is Psalm 43:  

I don't know - maybe it will help someone else out there. 

The preacher made me smile - he's trying hard to encourage us but with medical issue after issue after issue - it's hard to explain why people are allowed to suffer. So he said several times - keep hope and look at the success with the babies. ;) 

And we are SO THANKFUL for their progress!! I miss seeing my sweet nephews so much. The hospital Is about an hour away and I am required to have one of their parents with me to visit. Just difficult to schedule. But they are doing well and are handsome little fighters. 

I've had some Macy time as it's her daddy in the hospital. She is struggling with the emotions of not having her parents with her much and not understanding all the tension. Please pray for all these situations. 

Slumber party at MawMaw and PawPaw's house!!! For both of us! 

Sweet nieces at a local produce stand. I tried getting Christmas Card pics but had little luck. These smiles are beautiful though. 

Volleyball season wrapped up a last week and we are very proud of AH and her team. They improved over last year tremendously! 

Let's not discuss how much she's grown. Sniff sniff 

Preschool field trip. Seems someone loved the stick horse so MawMaw is making her one. 

Yesterday after Mommy got home from the hospital we had a front porch picnic. Macy was so glad to see her Mommy. She cried when we left to go up there. This evening when Katie came home after work and then the hospital, Macy grabbed her in a huge hug and said, "We are back together again!" So hard to juggle all life has put on their plates right now and know where to be and what balls not to drop. So tough.

A friend suggested I focus more on the positive. And there are positives!!! 

The sweet twins are getting stronger and have so many wonderful people praying for them. 

My dad got to meet his grandsons and introduce himself as Pop :) 

The support from our pastor, our church family, definitely our family and so many friends and friends of friends that we'll never know - thank you!!

S'mores with the family around the fire pit and eating too many marshmallows! 

The days have been beautiful, allowing us to enjoy the outdoors and Macy has been swinging her heart out. 

I'm so thankful I was able to attend AH's last game of the season, even though it was on an Election Day. God worked that one out! 

Every time my brother calls mom about a baby update, I can tell it just touches her heart. She's totally invested into her grandsons and hearing news is important to her. So glad Clay is keeping in good touch with her. 

A dear friend won her court case. Yay!! 

Rogers very life was in danger but the doctors were able to turn things around. Great nurses and doctors in the ICU, too! They deserve a lot of respect. 

My workplace has been so good about letting me off to take the day shift at the hospital with no guilt. They've texted and checked on us, too. 

Wow. An hour later and I'm wrapping this up. Y'all thanks for letting this be a place I can download emotions. It's hard to find someone to talk to when everyone around you is living it, too. 

Thanks for your prayers. :)

Friday, October 16, 2015

Name them before you forget them

Morning y'all.  It's another night of waking up at 3:30 am and being unable to go back to sleep. Dad called before 6 am because he saw my house lit up on his way to breakfast with the boys. ;)  

We've had a few more bits of tough news this week. I won't say bad because it may all be overcome simply through medicine. Mom had been concerned about Macy's vision and took her to the elementary school she retired from for a vision and hearing test. Hearing was good, vision not-so-much. Took her to the pediatrician who basically said - we don't do eye tests on three-year-olds so we'll refer you. As a side note here: it's amazing how little doctors know about their community. He had no idea if there was a pediatric optomistrist in our area and flabbergasted that it was requested. Thank heavens for the nurse who knew the answer and got us referred to a great doctor. 

Mom took her to the eye appointment. Pretty much immediately mom knew something serious was up. Both sides of Macy's family has Marfans. Marfans impacts connective tissue - most frequently eyes and heart. Macy is only seeing out of a small portion of her eyes right now. She'll have to head back to the dr for a more thorough checkup for heart issues. She's getting special glasses that will hopefully retrain her brain concerning her eyes, but if that doesn't work, she's headed to Duke for eye surgery. *DEEP BREATH* I'm sure you can try to imagine Katie's reaction to hearing this about her baby girl. But let me tell you about this doctor. The fact she has heard of Marfans is impressive. The fact she sent my sister her cell phone number with instructions to call at nine so she could explain everything - WHOA. This lady rocks. And let me say here: thank you, Lord, for placing this lady in our lives. I give Him all the credit for making it happen. 

My family is pretty familiar with Marfans because we assume our dad has it, and all three of us kids have signs but haven't been tested. Don't want that not covered by insurance as a pre-existing condition. It can be bad ma'am-a-jama stuff. 

That was Wednesday. 

Thursday, my brother and his wife were told both of their micro-preemie baby boys have heart murmurs. Things have been going really well for the boys so this was a toughie. Granted, you knew there would be setbacks along this path. Anyway, this is a common issue in preemies and they are trying to address it with meds, too. However, if that doesn't work, it's surgery for the little fellas, too. 

In the midst of all this, I realized I let all the negative news in our lives dominate my very well-being. My heart, my soul, my health. It's like everything in me is weighted down with sacks of heavy boulders I'm desperately trying to carry everywhere I go. So last night I vowed to make a change. 

In my prayer journal, I will start with five things I'm thankful for- Five Blessings. Because I know if you get out of the habit of being thankful, you can't even see your blessings anymore. 

Last nights blessings: 
1. The doctors found this heart issue with Liam and Kellan, are familiar with it and know how to treat it. 

2. The Lord led us to a wonderful eye doctor for Macy, who believes in supporting her patients- even at nine o'clock at night! 

3. My cousin's abdominal mass (10 lbs!) was NOT cancer!!! Huge cheer!!!! 

4. The Lord has given Clay & Angela and huge network of supporters praying for them and their sons. 

5. The Lord provided my mom a friend in one of her sister-in-laws when she needed one. It's been a huge blessing because she's trying to deal with all these issues, too. 

I'm going back to the basics, count your blessings and name them one by one. 

Yup. This is a long wordy post. Sorry about that. Sometimes I just need to unload it somewhere. 

You know, I think we may need to check! I mean, it couldn't hurt, right? Ok y'all, I'm heading into work. Gotta try to get Macy a minions Halloween bucket from Mcdonalds today. :)  I mean, yeah it does seem like the world is crumbling beneath my feet, but you still gotta have priorities!! *wink*  thanks for your prayers! 

Sunday, October 11, 2015

Heaven Help.

No really. After the weekend we've put in here on the hill, I'm hoping God's plan is to turn this around and pour on some sunshine. Literally and figuratively.

Thursday, I taught my morning class but knew I wasn't feeling right. It ended at noon and by 12:30 I knew - I had to go home and it had to be now. I have never left with another class on the way but I had no choice. I fell asleep driving home, scared the stuffings out of me!, and the minute I walked in the door I was sick sick sick. All day. Half the night. Fever. Chills. Sweats. Sick. Sick. Sick. 

My back, oh my gosh it hurt. I thought it had to be a kidney infection. Went to urgent care when they opened on Friday morning but no one could explain my back. Today, sickness is over and my back still hurts. Sucks. 

Dad was sick last night, same symptoms as me with body aches thrown in. 102 fever. ER visit this morning at 9 am. Left at 2 pm with "it must be a viral thing."  Got home and it really kicked in like I had. Except Dad is almost 70 so it's hitting him harder. 

Yeah I'm taking off tomorrow to rest up a little more and make sure I don't pass this to everyone in the office with an election coming up. They seem to appreciate it ;)

The babies seem to be doing well for their size. I tell you, I adore the sweet boys and could watch them for hours. They are so incredibly perfectly formed. I often think of God's craftsmanship as He knitted them in the womb. So amazing. I love to see them stretch and wiggle and wave and blow bubbles. When Kellan yawned, it absolutely delighted me. I pray both boys will make it through and become fierce warriors in God's army. I feel like they have big plans ahead of them. I don't share pictures to respect my brother and sister-in-laws privacy. I feel that is right. You'll just hve to take my word on it that they are HANDSOME. 

I know this is blurry but- mom and I ran into the Princesses at the children's hospital. Another recorded a message to Macy but it's on moms phone. She is going to freak out! And we get a pic of mom with these princesses, too ;) so gla there are groups that do this for the kids. 

I know this is a rambling mess. I feel like a rambling mess. If anyone has the solution to just feeling totally overwhelmed, please share. I could use it. 

Monday, October 5, 2015

Pure Love.

This weekend my sister-in-law brought two amazingly beautiful baby boys into this world. It's been a very difficult pregnancy but she has been so strong and fought for her babies every step of the way.

So Sunday morning at 12:03 am, two handsome boys entered this great big earth. Liam is 2 lbs 9 oz and Kellan is 1 lb 13 oz. they have a long road ahead and you know we would appreciate your prayers. 

Here I am visiting with Liam. These boys are so cute. And already showing personality!  So cool. 

Ok y'all, don't spill the beans on this ... I've been working on floor quilts for each boy. Here is one - the very first quilt top I've ever made. It's backed in flannel so this side can go face down and the baby will have soft fleece to play on. 

Here is the second, not backed yet but will be soon. This is a brick pattern and I really like it. May do this for Macy, just make it bigger. These are 40 x 40. 

The next photos show a gift I mailed to a friend in Columbia who is expecting.  

I just realized the completed photos are on my camera so these don't show the buttons. Oh well. You get the idea: burp cloth and matching bib. I've really enjoyed my sewing machine lately and wonder if I should try to sell these things. I don't know - we'll wait and see.  

(She is so cute!!) 
This is the week before the massive floods hit SC. I live in the upstate and while we were due 10" of rain, we got no were near that. The system stayed south of us and pummeled Columbia. That place is in a mess. I promise you, no one in Columbia has flood insurance. I just can't imagine what some are enduring. Please pray. 

I'm off to read some in Isaiah and wrap up my night :) thanks for your prayers! Night night! 
Related Posts Plugin for WordPress, Blogger...